Living With The Genome

Acknowledgements List of Contributors Glossary Introduction; A.Clarke PART 1: THE HUMAN GENOME PROJECT: GENETIC RESEARCH & COMMERCIALISATION Introduction; A.Clarke & F.Ticehurst Celera Genomics: The Race for the Human Genome Sequence; M.A.Fortun Human Genome Project as a Social Enterprise; P.L.Bereano Commercialization of Human Genetic Research; T.Caulfield Patenting of Genes: A Personal View; J.Rifkin Human Genome Diversity Project (HGDP): Impact on Indigenous Communities; J.Marks deCODE and Iceland: A Critique; E.Árnason & F.Wells Informed Consent in Human Genetic Research; P.R.Reilly Gene Therapy: Expectations and Results; P.A.Martin PART 2: GENETIC DISEASE: IMPLICATIONS FOR INDIVIDUALS, FAMILIES AND POPULATIONS Introduction; A.Clarke & F.Ticehurst Genetic Counseling: Psychological Issues; B.B.Biesecker Genetic Testing of Children; A.Procter Genetic Risk; L.Prior Genetic Susceptibility; C.Emslie & K.Hunt Thrifty Gene Hypothesis: Challenges; R.McDermott Carrier Screening for Inherited Hemoglobin Disorders in Cyprus and the United Kingdom; B.Modell Carrier Screening of Adolescents in Montreal; C.R.Scriver & J.J.Mitchell PART 3: DISABILITY, GENETICS & EUGENICS Introduction; A.Clarke & F.Ticehurst Nazi Movement and Eugenics; P.Weindling Eugenics: Contemporary Echoes; T.Duster China: The Maternal and Infant Health Care Law; S.Guo Disability, Human Rights and Contemporary Genetics; T.Shakespeare Mentally Handicapped in Britain: Sexuality and Procreation; J.McCarthy, V.Sinason & S.Hollins PART 4: GENETICS & SOCIETY: INFORMATION, INTERPRETATION AND REPRESENTATION Introduction; A.Clarke & F.Ticehurst Gene as a Cultural Icon; D.Nelkin Heredity: Lay Understanding; M.Richards Inheritance and Society; P.Atkinson, A.Bharadwaj & K.Featherstone Privacy and Genetic Information; V.English & A.Sommerville Insurance and Genetic Information; T.McGleenan 'Race', IQ and Genes; J.Beckwith & J.S.Alper Criminal Responsibility and Genetics; J.Bostock & G.Adshead PART 5: GENETICEXPLANATIONS: UNDERSTANDING ORIGINS AND OUTCOMES Introduction; A.Clarke & F.Ticehurst Genetics as Explanation: Limits to the Human Genome Project; I.Cohen & H.Atlan Darwin and the Idea of Natural Selection; G.Dover Sociobiology, Evolutionary Psychology, and Genetics; P.Bateson Creationism; M.Ruse Genetics, Reductionism and Autopoiesis; S.P.R.Rose Personal Identity: Genetics and Determinism; R.Chadwick Racism, Ethnicity, Biology and Society; H.Bradby PART 6: REPRODUCTION, CLONING AND THE FUTURE Introduction; A.Clarke & F.Ticehurst In Vitro Fertilization: Regulation; D.Morgan & M.Ford Reproductive Choice; J.Harris Feminist Perspectives on Human Genetics and Reproductive Technologies; D.Dickenson Sex Selection; D.Davis Dolly and Polly; A.Petersen Cloning of Animals in Genetic Research: Ethical and Religious Issues; A.Linzey & A.Barsam Distributive Justice and Genetics; C.Farelly Reprogenetics: Visions of the Future; R.Kollek Index